Chronic Fatigue Syndrome Support Groups
Chronic Fatigue Syndrome Support Groups.
Their Importance And How To Find Them Like most things in life, we find great comfort in finding others who
share similiar experiences, and can understand what we are going through.
Having symptoms like chronic pain and fatigue can really wear you down and knowing that there are others, who
really do understand what you are dealing with, can be wonderful.
Although not everyone with Chronic Fatigue Syndrome (CFS) experiences exactly the same symptoms, just sharing
with others who can relate to each other is worth the effort of finding and joining a support group.
Topics Discussed In Groups:
- To be able to recognize and if possible avoid situations that lead to aggravation of CFS symptoms
- How and Where to seek help from other people
- Understand how CFS can have an effect on those who are your support, including members of your family.
- How you can find enjoyment in everyday life events, despite your chronic symptoms.
Part of the uniqueness of group therapy over any other is that when you are sharing what works and what doesnt
work in regards to therapy; hearing about what you should do can sound less severe when it comes from someone who
truly walks in your shoes.
An example would be, when a fellow CFS patient tells you that staying in motion and avoiding bed rest; helps
lessen stiffness; you are more likely to listen and accept this than perhaps when you hear the same thing from a
There are some people that find attending support groups can make them feel more like a victim of the disease
due to so many people gathered together with the same diagnosis.
If this happens, this is ok. You will be able to explore other support options with your physician. Support
Groups are not necessarily for everyone and this may not be your cup of tea. Remember, that there is the right kind
of support for everyone.
A support group should lessen your stress, not add to it. Cost To Attend A Group Most groups are free to attend,
though you may find that there are some groups that ask for a donation to cover expenses, or some that may ask for
a small membership fee just to cover refreshments.
Chronic Fatigue Fast Facts
The Nitty Gritty Important Issues Surrounding CFS
Chronic Fatigue Syndrome or CFS is a poorly understood ailment. Annals of Internal Medicine in December of 1994 published a definition for Chronic Fatigue Syndrome under the guidance of the Center For Disease Control. Here is a shortened outline of that definition:
To be diagnosed with CFS the patient must present with new, unexplained fatigue that has been of 6 month duration or longer that can not be attributed to physical exertion, cannot be relieved by rest and limits or reduces the...
A professional who has both experience leading a group and is also familiar with CFS usually leads support
Most groups contain a mixture of new members and members who have attended the group over a long
period of time.
Avoid groups where you discover the following: (Do not let this list scare you.you are not likely
to run across these things in groups that you are referred to by your physician or other health professional) There
is a promise for a quick or sure cure, especially if they are promoting a supplement or medication.
The meetings turn out to be "gripe" sessions You are asked to stop prescribed treatment and are
asked to take something they want you to take You should never be asked for private or sensitive personal
information There should never be any demands made that require allegiance to a cult-like, charismatic
Chronic Fatigue Syndrome Facts
Chronic Fatigue Syndrome can be very difficult to diagnose correctly in children because the
nature of the symptoms often mimic other diseases. The Doctor will need to run tests to rule out
any other possible cause for the child’s symptoms.
There should never be any fees other than minimal ones to cover refreshments You should never be
asked to make any product purchases from the group Use your common sense when searching for the right support
Ask questions of the leader and attend a meeting before making up your mind. Whether or not a
support group is what you decide to do, getting some kind of support should be a part of your treatment